The Group is run by volunteers, with the sole aim of serving all those in the area who are living with Motor Neurone Disease (MND) and their carers, family and friends.
The Group also has a team of trained Association Visitors who offer a befriending role providing support, information, and an ongoing link with the Motor Neurone Disease Association to people living with MND.
We can provide practical support in the form of liaison with health and social care professionals such as speech and language therapists, specialist equipment and the medical profession.
Fundraising and raising awareness are also very important aspects of group activities, and we organise events throughout the year which are well supported.
MND Connect
If you are newly diagnosed or would like to talk to someone about MND, please contact MND Connect.
MND Connect is the Association’s helpline, which offers people access to practical and emotional support and also direction to other services and organisations.
MND Connect is available: Monday to Friday – 9:00am – 5:00pm / 7:00pm – 10:30pm
Tel: 0808 802 6262
East Sussex Young Carers
This organisation supports the most vulnerable young carers aged 5 – 18 years who are responsible for caring for a family member with a long-term illness or disability.
East Sussex Young Carers provides information, advice, guidance, signposting and advocacy through a single point of contact called the Young Carers Hub. This is available to Young Carers, families and professionals.
Chill Clubs are dedicated groups in East Sussex for Young Carers to meet each other, talk about their caring role and, of course, have fun! Chill Clubs are tailored to suit to the nature of the caring role. East Sussex Young Carers support team provides face to face support to Young Carers individually and to the whole family.
Education is an important building block in all young peoples’ development; Young Carers are no different. East Sussex Young Carers offers tailored training and information to schools which will enable them to identify and support Young Carers in house.
East Sussex Young Carers works in partnership with Children’s Services, Adult Social care, schools and colleges, NHS services, Voluntary and Community organisations to achieve the best outcome for Young Carers.
East Sussex Young Carers supports Young Carers to make sure that their caring responsibilities don’t get in the way of living their own life.
Telephone: 0300 777 2011
Email: info@eastsussexyoungcarers.org.uk
www.eastsussexyoungcarers.org.uk
Facebook: facebook.com/EastSussexYoungCarers
Twitter: @ESussexYCarers
Care for the Carers
Care for the Carers supports anyone living with the challenges of caring, unpaid, for a family member or friend who is ill, frail, disabled or has mental health or addiction problems. We aim to improve the quality of carers lives by helping the local community recognise and value the role of carers, and by enabling carers to access the services & support they require. There is information and fact sheets regarding your rights as a carer and what help and support is available to you.
They are also an invaluable resource for anyone caring for a person living with MND. Please check out their website and sign up for their newsletters which can be found by clicking on the following link: Care for the Carers
Businesses across East Sussex have also signed up to support local unpaid carers by providing offers or discounts through the East Sussex Carers’ Card Scheme. This includes parking reductions at Eastbourne District General Hospital and the Conquest Hospital in Hastings. To find out more and to apply for a card, call 01323 738390, or register on the Care for the Carers’ website at: www.cftc.org.uk/get-a-carers-card.
Cruse East Sussex
Cruse East Sussex offers expert bereavement counselling and support. There is provision of confidential support and information to bereaved people of all ages free of charge. Services include one-to-one support and drop-in groups. Drop-in groups are available in Brighton, Lewes and Eastbourne.
National helpline: 0808-808-1677
Contact: eastsussex@cruse.org.uk or go to cruse.org.uk website where CruseChat is also available.
Support in Brighton and Hove – tel: 01273 234007
Support elsewhere in Sussex – tel: 01323 642942
Carers’ Grant
The Carers’ Grant provides support and help to those carers who are themselves providing care to those who are living with MND. For more information please see the Forms page.The grant can be used towards the following:
- Travel Expenses
- Pamper days
- Catering
- Carer home care
- Outings for carers
- Reflexology sessions
- Other therapy sessions
- Carers’ training
- Holiday fund
- Home cleaning
- Ironing
- Theatre outings
- Gardening assistance
- Lunch with friends
- Short periods of respite care i.e. evening/afternoon