The Group is run with the sole aim of serving all those in the area who are living with Motor Neurone Disease (MND) and their carers, family and friends.
The Group also has a team of trained Association Visitors who offer a befriending role providing support, information, and an ongoing link with the Motor Neurone Disease Association to people living with MND.
We can provide practical support in the form of liaison with health and social care professionals such as speech and language therapists, and the medical profession.
We can provide specialist equipment to improve the quality of life of all those affected by the disease.
Fundraising and raising awareness are also very important aspects of group activities, and we organise events throughout the year which are well supported.
If you are newly diagnosed or would like to talk to someone about MND, please contact MND Connect.
MND Connect offers people access to practical and emotional support and direction to other services and organisations.
MND Connect is available: Monday to Friday – 9:00am – 5:00pm / 7:00pm – 10:30pm
Tel: 0808 802 6262
The Association’s Helpline offers information and support to people affected by the disease.
East Sussex Young Carers
This organisation supports the most vulnerable young carers aged 5 – 18 years who are responsible for caring for a family member with a long-term illness or disability.
East Sussex Young Carers provides information, advice, guidance, signposting and advocacy through a single point of contact called the Young Carers Hub. This is available to Young Carers, families and professionals.
Chill Clubs are dedicated groups in East Sussex for Young Carers to meet each other, talk about their caring role and, of course, have fun! Chill Clubs are tailored to suit to the nature of the caring role. East Sussex Young Carers support team provides face to face support to Young Carers individually and to the whole family.
Education is an important building block in all young peoples’ development; Young Carers are no different. East Sussex Young Carers offers tailored training and information to schools which will enable them to identify and support Young Carers in house.
East Sussex Young Carers works in partnership with Children’s Services, Adult Social care, schools and colleges, NHS services, Voluntary and Community organisations to achieve the best outcome for Young Carers.
East Sussex Young Carers supports Young Carers to make sure that their caring responsibilities don’t get in the way of living their own life.
The Carerss Grant is a three yearly small sum of money obtained from the East Sussex County Council. It gives the branch an extra dimension to our funding to provide support and help to those carers who are themselves providing care to those who are living with MND. It helps towards the following:
- Travel Expenses
- Stationery & postage
- Pamper days
- Carer home care
- Outings for carers
- Meeting room hire
- Reflexology sessions
- Other therapy sessions
- Carers’ training
- Holiday fund
- Home cleaning
- Theatre outings
- Gardening assistance
- Lunch with friends
- Short periods of respite care i.e. evening/afternoon